Aphasia Education and Advocacy
Acquired Aphasia vs. Primary Progressive Aphasia
In light of the recent news regarding Bruce Willis’ diagnosis, we want to provide information and resources on both Acquired Aphasia and Primary Progressive Aphasia. To be clear, at the time, we do not have a complete understanding of Willis’ diagnosis. As the news unfolds, we may have more information.
Pursuing Higher Education
Boston University Aphasia Research Laboratory offers an Intensive Cognitive and Communication Rehabilitation (ICCR) program for young adults with Traumatic Brain Injury (TBI) or Aphasia who are interested in continuing or pursuing higher education. The program is now available for those living outside of the Boston area, via ZOOM.
Situational Aphasia Wallet Cards
Carrying a personalized wallet card can be a great way to educate others about Aphasia and about the communication strategies that help you the most. In honor of June being National Aphasia Awareness Month, our survivor Bryn Bowles has created a variety of wallet cards that can be used and shared for different situations (i.e. transport, pharmacist, cashier, etc.). AND these wallet cards each have a QR code that can be scanned for more information!
Build Your Own Home Practice Program
Aphasia recovery is a slow road with an often windy path. However, we know that with continued
speech and language treatment, progress can be made. Unfortunately, speech and language therapy can get expensive, especially over several years. But, with a little bit of creativity, along with self-motivation and support, one can undoubtedly take control
of their own recovery by building their own home practice program. We encourage you to use this resource to start building your own home practice program.
Going Back to Work
Finding a job for Stroke or Brain Injury Survivors with Aphasia can be a challenging and unique experience. We spoke with 3 young persons with Aphasia who are at varying stages of returning to work. Each story reveals the array of challenges a person with Aphasia faces as they try to return to or enter the workforce. We've also included resources for PWA returning to work.
The Importance of Aphasia Advocacy
Advocating for Aphasia Awareness is extremely important. It is crucial for family members and professionals to get involved with Aphasia advocacy, especially early on when it might be particularly challenging for the person with Aphasia to advocate for themselves. We reached out to some of our caregivers to ask how they advocate for their loved ones with Aphasia.
Navigating Aphasia Resources
Often we hear from clients, "I wish I knew about these resources sooner." or "I did not get any information from the hospital." This resource aims to change that . It is a succinct list which highlights the most popular Aphasia resources available. We hope that you will print this handout and distribute it to your local hospitals so that it can be shared with those newly diagnosed with Aphasia.